I stepped onto The Hungarian's porch and shivered. Although it was in the final days of November, it was the very first time it was cold out. I pulled on the coat that I brought just in case and zipped it up. The Hungarian, who usually watches to make sure I get to my car okay, had long shut the door and moved on.
It was also cold inside the house after the Great Dishwasher Incident of 2010.
I exhaled, but I didn't see my breath like I expected I would. The very last thing The Hungarian said to me was "It looks like Winter's here." I'm glad the outside matches my inside.
***
The next morning I had my appointment with my endocrinologist. He flipped through the results of my CBC and serum chemistry. It was good news. For the first time in three years, I was healthy.
"Now it looks like your body is never going to process calcium naturally," he admitted. He put the chart down and looked at me. "How far away are you from getting pregnant?"
I looked down at my feet and gurgled. Really? We have to have this discussion hours after I decide I don't want to see someone anymore? "Um, pretty far," I mumbled.
"Well you're still in your childbearing years."
What? I'm 29. I'm in the infancy of my childbearing years.
He expressed concern for my calcium levels if I ever do become pregnant. "The second you become pregnant, we'll want to see you immediately. Your calcium will need to be monitored carefully." He kept talking about pregnancy and pregnancy and pregnancy. I wanted to roll off the table with the paper sheet and die.
~Thursday, December 02, 2010
Winter's Here
~Friday, April 30, 2010
Fantasy versus Reality
~Friday, December 11, 2009
Do-Over
~Thursday, September 17, 2009
Scars
~Tuesday, May 26, 2009
Things You Need To Know
- I was laid off from my job on February 4th, 2009. If I hear "Due to the poor economic climate..." one more time, I'm going to rip my ears off and shove them in my mouth.
- The day after, February 5th, 2009, my third biopsy of my thyroid came back inconclusive again. The big C-word was being whispered around. I was scheduled for immediate surgery to have my thyroid removed. When I cried (about paying for the surgery. The idea of spending money while unemployed freaked me out more than the big C-word did.), the doctor said this would be a great time for surgery "because [I] had nothing better to do."
- The pathology lab came back a few weeks later and said that all the tumors on my thyroid were benign. I finally had a diagnosis, but it didn't really make me feel any better. I sort of feel like I went through the whole thing for nothing.
- I had to stay with my mother following the surgery to recuperate. Scott didn't have a driver's license or a car, nor did he schedule the day off for my surgery, so he was pretty unfit for taking care of me. When I ended up in the emergency room for complications of surgery, he told me that my problems were psychosomatic and that I needed to snap out of it and come back to the apartment. He said that his surgery was worse and more painful and he got through it, so I shouldn't be such a wimp. I tried telling him that this wasn't a patch job, that my entire endocrine system was screwed up, but he hung up the phone on me. This had no bearing on why we broke up, but it always gnawed on me that when I needed surgery, he wasn't capable of taking care of me.
~Monday, October 06, 2008
Bad, Good, Ugly
"We found a few benign cells," the doctor tells me over the phone, but before I can breathe a sigh of relief, he quickly finishes, "but not enough to rule it as benign."
"So it's inconclusive again?" I ask, thinking about the inconclusive statistic which means imminent surgery.
"No, not inconclusive, just... not benign."
So, not cancer, but not benign.
In my flow chart of hypothesized outcomes, this wasn't one of them. He then looked over my blood work to see if I was eligible for medication to shrink the tumors. "No," he tsked. "Your levels are high, so any medication would not only be useless to you, but it would also throw your body into hyperthyroidism."
"Hyper? As in rapid weight loss?" I asked.
"Yes, as in eyes bugging out of your head," he corrected.
"Oh."
He gently encouraged me to have the surgery to remove my thyroid and "put this behind [me] and move on with [my] life." When I told him I was not ready to have surgery yet, he then gave me the option of waiting another six months and having a third biopsy to see if there are any changes. I greedily accepted and promised him that if I felt any pain in my neck, or noticed it larger in size, I would have it out immediately.
In other news, I had to have a different biopsy on a very scary part of my body, but that came back all clear with nothing wrong. The relief of a benign biopsy made me giddy.
In other other news, they are laying off 20% of my company tomorrow. The shit keeps a commin'.
~Thursday, September 11, 2008
Results
Today, I am tired.
I spent 11 hours at the hospital yesterday, sitting in uncomfortable waiting room chairs (whoever thought an aluminum pipe was adequately served as an armrest is an idiot) and watching re-runs of at least 8 reality court room dramas. Judge Joe Brown, Judge Christina, Divorce Court, and Judge Judy—apparently they air them once in the morning and again after lunch. I'm glad to be employed.
If it's even possible, Scott's injuries were worse than everybody thought. The white stuff that I thought I had been looking at in Scott's hand over the last couple of weeks were not his tendons; it was his bone. Instead of shaving off the top layer of skin on his thigh and leaving a sunburn mark, the doctor instead had to remove, to quote him, "a sizable chunk" from his leg to adequately cover his hand and elbow. He now has a stitched scar running from his knee cap up the length of his inner thigh—like an inseam to his pants. He may never be able to use the last few fingers on his left hand again; the pin inserted was merely to keep them straight and not grow permanently curled into his fist.
The surgery lasted over three hours. I got a lot of knitting done, a little reading done, but absolutely no work. It's hard to write a magazine article in the state of mind I was in, followed by the background noise of Gary Coleman's appearance on Divorce Court.
He had been awake for over two hours before I could see Scott. The ambulatory surgery wing has closed by then, leaving me alone in the waiting room with the lights off. The anesthesiologist did an additional procedure to block the nerves in his left arm—if Scott had absolutely no feeling in his arm, then he also wouldn't feel any pain.
My endocrinologist called me first thing in the morning and gave me the results of my biopsy. It wasn't good news and that's all I'm going to get into for now.
Today, I am tired.
~Friday, September 05, 2008
Mr. Freeze Versus the Thyroglobulins
Having become something of a biopsy regular, I don't have the same story this time that I had last time. The only noticeable difference is that my newly acquired, super expensive, super exclusive endocrinologist doesn't believe in local anaesthetics.
"The injection of the anaesthetic will be just as painful as the biopsy needle," he tried to explain to me.
"Yes, but there isn't one biopsy needle, there's three. And you don't just insert the biopsy needle, you stick it in and wave it around like a damn jackhammer." Seriously, by the time you get to the third needle, who cares about the first teeny weeny anaesthetic injection? And this isn't even touching on how a needle actively moving around inside your throat doesn't feel like a shot of B12 to the arm, which I also had to look forward to, followed by another round of blood samples after that--what's one more needle prod?
But I lost out because the super duper endocrinologist prefers the freeze method. I didn't get a good look, but I assume it's a can of frozen air something or other which he sprayed liberally on my neck, causing me to break out in a fit of shrieks and giggles on the operating room table. The opera playing on a tape deck in the corner of the room was accompanied by the whoosh of aerosol and my full belly-laugh hysterics.
"Looks like someone is ticklish," chirped the nurse.
"I get a lot of reactions with the freeze, but I've never had anyone laugh before," said the doctor, which really made me uncomfortable, because how many patients has this super endocrinologist seen during the life of his practice and I'm the only one? I never like hearing something I do is abnormal.
And so I wait. Again. If this biopsy comes back inconclusive again, he's operating and taking my thyroid out as a cancer precaution. Apparently the cancer risk is very high with two inconclusives. If my thyroglobulin levels come back high, he's operating and taking out my thyroid. I didn't bother to ask why. If my levels are come back normal, then I get to keep my thyroid, but get put on medications to try to shrink the tumors. Even though it looks like I'm going to be one of those people who has to take medication every day for the rest of my life no matter the outcome of this, obviously I'm still hoping for the third option because frankly I kinda like my thyroid even though my body doesn't.
I asked him why all of this happened in the first place, and he said my body got confused and thought my thyroid was now magically a foreign object, so it started attacking it. Apparently my body isn't very smart.
~Wednesday, August 20, 2008
Aftermath
I've been fortunate that my new place of employment lets me work from home when I need to. I took most of last week off to take care of Scott. The first couple of days he couldn't move around much and he was bleeding through his bandages every couple of hours. This product is really good at getting blood and ooze out of blankets, sheets, and couch covers. Good news is that he didn't lose his appetite like he did last time, so the roles have been switched and I've been cooking for him. However, my role of cooking has been heating up a can of tomato soup and grabbing the crackers out of the cupboard.
We went to the impound lot to visit his bike. Neither of us could agree what it looked like from the accident. He asked me in the hospital and I told him the mirrors and the handle bars had broken off. He looked away, assuming I was exaggerating.
"No, I remember looking over at it when I was strapped to the gurney. It didn't look that bad," he argued.
"Babe, you were unconscious for over 10 minutes. You are deluded if you think it's fine. It's totaled."
I told him that again when he got a $105 of his money to get the bike out of impound. He dismissed me again.
The bike was actually worse than I thought. Not only were the handle bars and mirrors broken off, but so were the tail lights, the wind screen, and the instrument panel. The front is a heap of broken plastic knotted by exposed wires. Instinct told me to grab my camera from my purse and take pictures of the bike. Maybe I'll upload them later. While I was zooming and focusing, Scott took the bike off the kick stand and found the start button dangling to the right side. He inserted his key and tried to start it. After a few tries, the damn thing started. It was all he needed to think that he can haul the bike home and fix it.
"Yeah, you'll just need a whole new front end," I said wryly.
As we waited an hour for his step-father to drive into the city with his pickup truck to load Scott's bike, we ran to a nearby fast-food joint to get lunch.
"I really thought I could just drive it home," Scott admitted.
"Deluded," I repeated, mouth full of burrito. "I told you there were no handle bars on it."
"I thought you were just being a woman."
I raised an eyebrow.
"You know," he explained, "Making things sound worse than they really are."
"Well it was really missing its handle bars."
***
On Thursday, I called in a favor with my family friend who's a doctor and made an appointment for Scott. My mother goes to him and says he's a good doctor, but I just don't get that same feeling. After seeing a specialist for my thyroid tumor, the specialist was shocked that he put me on steroids for it. I did some research on it as well and I told my parents and Scott that I wasn't comfortable with his treatment. Not really having an alternative, and partly not wanting to hurt his feelings with my doubt, I took the steroids. Which, according to the specialist I'm currently seeing, was a huge mistake. (By the way, I'm having another cancer biopsy next week, so awesome that all of this is going on at the same time.)
In the cramped room we waited for the doctor. I took out my camera again and took pictures of Scott's injuries (too gross to upload). The doctor came in and took one look at Scott's knees and pulled out his prescription pad. Scott started on the story with the accident, what hurt, and he started to unwrap his hand to show the doctor his injuries. The doctor cut him off. Scott looked at me helplessly.
"We want to tell you what happened," I tried.
"No, I don't need to know and I don't need to see it. I can tell from his legs that he has an infection. He needs antibiotics."
"I asked for some at the hospital and they wouldn't give me any," said Scott.
The doctor shook his head, presumably about the quality of the hospital, and continued writing on his pad.
"But won't you look at his hand? It looks bad," I said.
"No, I don't need to see his hand," he said visibly irritated.
"Well, he has a hole in his arm and he's complaining about painful breathing."
"Look!" the doctor whirled around. "We can either sit here and talk about what needs to be done, or we can do it! Which do you want?"
Scott and I both looked to the ground like scolded school children. I don't know if he's that good of a doctor and just doesn't need to see Scott, but I know I want the peace of mind of telling the doctor what happened and showing him the injuries just in case there is something going on that he doesn't see from a skinned knee.
He's been on the antibiotics for five days now and there is no improvement. If anything, Scott's hand continues to swell. Fortunately, the painful breathing has stopped. I called my mom and told her about the doctor's visit. Concerned, she said he messed up once with my thyroid tumor treatment and now this. She said he's going through a messy divorce and his kids no longer visit him because their mother now has all the money. She thinks that this is affecting his work.
Screwed over by a hospital and now a loose-cannon doctor, we continue to seek medical treatment for Scott.
~Monday, March 24, 2008
Statistics
I'm a big fan of numbers. I find no solace in my friend Mel soothingly telling me that I'll find someone to share my life with, that she just knows it. I can't trust her faith over my own, but I can believe statistics. Statistics are more concrete than Mel's faith, and they tell me that 90% of Americans will marry in their lifetimes should they choose. 90% is a comforting statistic.
Much similar to when I ended up on Plan B some months ago after a broken condom. Plan B has a 90% chance of preventing pregnancy. And sure enough, even though I rarely feel like I belong with the majority, I fell into the 90% category.
The thyroid biopsy had a 90% return rate: 75% chance it came out benign and like a 7% chance of malignancy. Throw in human error and there was a 10% chance that it could be inconclusive. I felt fine, knowing that I was going to find out what was going on diagnostically one way or the other. After all, 90 is a big number.
But the doctor came back with "inconclusive" and "atypical cells." He can't rule out cancer, and wants to schedule me for another biopsy. Another one. And because of my virtually nonexistent health insurance, I'm out of money after writing a rather large check for the first one. Not the mention that once ruled inconclusive, the statistic goes up: 50% chance of the second test being inconclusive as well.
They can't tell me if I have cancer or not. Ah, I was going somewhere with this, but I can't remember after laying it out there like that. They don't know, and that's the bare bones truth of it all.
~Thursday, March 13, 2008
Waiting
The nurse walked into the waiting room.
"Sarah Hck...hck...chk," she stuttered.
Scott corrected her and I gave her the warm, forgiving smile that I reserve for strangers who attempt my last name. That's okay. I forgive you. You tried.
"Thanks for waiting for so long, if you just follow me back here-" the nurse continued. Scott stood up and gathered my purse, book, and jacket for me so I wouldn't have to carry them.
"Well, can I come with her?" he asked.
The nurse looked sideways at me, "Do you need him to?"
"No!" I chirped. I flashed him a quick, broad smile so he'd believe me. I didn't want Scott with me. I was the one with the hospital band tied around my wrist; I needed to do this alone. I didn't want the nurse to think I was weak. I didn't want Scott to see what they were going to do to me. I had to be strong.
I blocked Scott from the exit door, "I'll be right back!" I waived and disappeared with the nurse. I wish that I hugged him and kissed him before I went away, but I had to be strong. I guess I was more nervous than I originally thought. A lot more nervous.
I followed her through the halls of radiology. "So were you in a different department?" she asked, making conversation.
"Yes, they originally sent us to nuclear." I tripped over my own words. All of a sudden I'd forgotten how to say nuclear and I didn't want to pronounce it the way Bush does, so I ended up slurring the end of my sentence. A lot more nervous, I thought again.
One opened-butt gown later and the nurse spread the jelly on my neck and the ultrasound began. I reminded her that the pain was on my left side, and she told me she needed to see what the right side looks like as well.
"So, um, lumps in your neck, are they normal—I mean common?" I asked.
The nurse widened her eyes and shook her head no. Okay then. Not common. So imagine my surprise when the ultrasound screen showed five of them on the right side of my neck, and that wasn't even the side that hurt. She saved each screen and measured each lump. I quit asking questions, deciding that maybe ignorance was really bliss in this circumstance.
The nurse adjusted her pressure when she moved to the left side of my throat. Bob quickly appeared and took up the entire ultrasound screen. I'm familiar with Bob. He's the giant lump that made my breathing shallow, eating difficult, and yawning painful. He's the lump that I've had since January and is visible to the naked eye. Stupid Bob the tumor.
Once again, the nurse froze the screen and captured Bob. She said he's about the size of a ping pong ball and, according to the screen, he's got some brothers and sisters behind him on the left side as well.
The doctor arrived and everyone suited up: hair nets, surgical masks, et al. "The good news is that the lump-"
"Bob."
"What?"
"She named her lump," explained the nurse. "Bob."
She laughed. "Okay! Well then. The good news is that Bob is so big we won't have to do a lot of digging with the needles. We can go in and get our samples and get out."
There was a pinch and then fire filled my neck as she injected the local anesthetic. The biopsy began. To my left was the doctor with the scary, tissue-collecting needles and to my right was the ultrasound machine that showed the needle plunging into my neck, towards Bob. I chose to close my eyes for the procedure.
I could feel the needle and the poking and prodding, it just didn't hurt. I was okay with that. Her promises were going swimmingly until she took the needle and shook it furiously while it was still in my neck. "Just need a good sample!" she chirped as I involuntarily groaned, realizing that I had been holding my breath the entire time.
"You're doing really well," the nurse offered. "Do you want to hold my hand?"
Lying on the bed, I couldn't even remember where my hands were. I flexed my right hand and discovered it was in my left hand. I was holding my own hand. My only goal for the biopsy was to not cry, so I accepted the nurse's hand. One hand on the ultrasound and the other comforting me; I was grateful for her.
The doctor plunged the needle in my throat and swished it around two more times and then the procedure was over. A Band-Aid, a pack of ice, and the nurse showed me the way back to my boyfriend. "He was really worried about you, you know," she said. "He was very anxious, so you better get back to him."
Despite the absence of drugs, I was dizzy and reeling over the whole ordeal. I couldn't walk, only shuffle unsteadily back to the ultrasound waiting room. Scott took my arm and guided me as I teetered down the hallway, towards the car to go home.
"What'd they say?"
"They said I get a free blow job pass."
"No, when will you know?"
"A week."
And so we wait.
~Thursday, February 21, 2008
My Very First Valentine's Day
So I've been sick. I have been sick for quite awhile actually. I started feeling ill last Tuesday or Wednesday, but made it until Thursday afternoon before I allowed myself to leave work. The flower delivery had just come for Valentine's Day and I wasn't on the list. I didn't think I would be—it's too expensive a gesture for our budget—but when the rounds had come and I had nothing else to hold out for, I went home with a fever.
We never talked about our expectations for Valentine's Day. I had never had a real one before, so I didn't really know what to expect. The one I had in college, Valentine's Day came within a week of our six-month anniversary, so we decided to beat the crowds and just celebrate our anniversary instead. The one I had after college, I was in a long-distance relationship, so we celebrated the weekend before. This was my first honest-to-god, I love you and will see you on the actual day, Valentine's Day.
Scott woke me up in the bedroom at 6:30 pm. "You're hot."
"Ugh, no I'm not."
"No, I mean, you're hot. As in feverish."
"Oh."
Scott left the bedroom and headed to the kitchen, "Do you want your gifts?"
I didn't. Because if I get them now, then it's over; nothing else to look forward to. I yawned and stretched. Getting up from naps is pretty easy for me, but my eyelids felt... bloated.
Scott returned with a glass of ice water and handed it to me. He sat down on the edge of the bed. "I didn't know where you wanted to go to dinner, so I called and made reservations at three different places. One is at 8, another is at 8:30, and the last one is at 9:30. Your choice."
"Aww." All week he had been complaining about Valentine's Day and its conspiracy, blah, blah, fueled by women for women, blah. But in the end, he came through.
I got up to take a shower, hoping the hot steam of the bath would relieve some of the pressure I felt on my face and chest. I kept standing under the stream of water waiting to feel better, but instead I felt tired and sweaty with bloated eyelids. I eventually gave up and got dressed and ready for dinner.
By this point Scott had dozed off on the couch and there were still a few minutes before I had to wake him. I clicked around on the TV while tugging at my turtleneck until I felt claustrophobic and smothered in my own clothing and I ran to the closet with a wimper, exchanging my deviled turtleneck for the fat pajamas. You know the ones. Then I crawled back into bed without waking him up.
We missed all the reservations except for the 9:30 one at our regular place. But when Scott hovered above me on the bed again, talking about dinner again, I began to cry. I was sick. I finally had to admit it. And hell if I want to put on clothes that don't have a drawstring and and do things like sit up. So instead of a Valentine's dinner with candles, I sent Scott down to our other regular place—the Chinese take-out downstairs—and had him pick up some wonton soup for me.
He also brought me a bottle of wine, a single red rose, and a small box of chocolates. Only my boyfriend has alcohol issues, so he drank the wine. And my lovely dog snatched the box of chocolates off the coffee table while I was napping and tore off the cardboard heart top with precision and ate my chocolates.
I've just now replaced my chocolates in the seasonal 75%-off aisle of Walgreens while picking up my prescriptions (all $250 worth. Ouch.) after missing a week of work. In addition to bronchitis, it seems I have an unknown thyroid problem which I have to get screened for cancer (Yea!) and possible surgery (Woo.) And who knows how much all of this is going to cost because I have the worst health care plan in the United States. No lie. It's like I don't even have insurance. Actually, it is so bad that I just tell doctors I don't have insurance. It only covers me for catastrophic events like car accidents and cancer. Well then, it looks like I am covered.
So that was my Valentine's Day.
6:35 PM
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